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Call for new members of the Commission´s expert group on rare diseases


Are you an expert in the field of rare diseases or do you represent an organisation involved in rare diseases related activities? Are you interested in making a difference in Europe? The European Commission is looking to appoint the members of the expert group on rare diseases.

Apply now at: http://ec.europa.eu/health/rare_diseases/expert_group/call_en.htm

European level patients´ organisations, professional associations, scientific societies and associations producing products or providing services in the field of rare diseases are invited to express their interest and appoint their representatives. N.B. for individuals applying, public health or scientific expertise in the field of rare diseases at EU level is essential.

Both individual experts and other members´ representatives should be available for a three year term of office and willing to travel to Luxembourg for regular meetings. Other terms and conditions can be found in the Commission Decision on the setting up of the rare diseases expert group and in the call for expressions of interest.

Once appointed, the expert group will carry out certain tasks in the field of rare diseases requested by the Commission´s services. These tasks can include assisting in drawing up guidelines and recommendations, providing advice on implementing EU actions, monitoring, evaluating and disseminating results of EU and national measures, and international cooperation.

For more information about EU policy on rare diseases:

Fecha de publicación: 12/09/2013